Laurene got down on her knees and looked into his eyes.
“You can do this, Steve,” she said. His eyes widened. His lips pressed into each other.
He tried. He always, always tried, and always with love at the core of that effort. He was an intensely emotional man.
I realized during that terrifying time that Steve was not enduring the pain for himself. He set destinations: his son Reed’s graduation from high school, his daughter Erin’s trip to Kyoto, the launching of a boat he was building on which he planned to take his family around the world and where he hoped he and Laurene would someday retire.
Even ill, his taste, his discrimination and his judgment held. He went through 67 nurses before finding kindred spirits and then he completely trusted the three who stayed with him to the end. Tracy. Arturo. Elham.
One time when Steve had contracted a tenacious pneumonia his doctor forbid everything — even ice. We were in a standard I.C.U. unit. Steve, who generally disliked cutting in line or dropping his own name, confessed that this once, he’d like to be treated a little specially.
I told him: Steve, this is special treatment.
He leaned over to me, and said: “I want it to be a little more special.”
Intubated, when he couldn’t talk, he asked for a notepad. He sketched devices to hold an iPad in a hospital bed. He designed new fluid monitors and x-ray equipment. He redrew that not-quite-special-enough hospital unit. And every time his wife walked into the room, I watched his smile remake itself on his face.
For the really big, big things, you have to trust me, he wrote on his sketchpad. He looked up. You have to.
By that, he meant that we should disobey the doctors and give him a piece of ice.
None of us knows for certain how long we’ll be here. On Steve’s better days, even in the last year, he embarked upon projects and elicited promises from his friends at Apple to finish them. Some boat builders in the Netherlands have a gorgeous stainless steel hull ready to be covered with the finishing wood. His three daughters remain unmarried, his two youngest still girls, and he’d wanted to walk them down the aisle as he’d walked me the day of my wedding.
We all — in the end — die in medias res. In the middle of a story. Of many stories.
I suppose it’s not quite accurate to call the death of someone who lived with cancer for years unexpected, but Steve’s death was unexpected for us.
What I learned from my brother’s death was that character is essential: What he was, was how he died.
Tuesday morning, he called me to ask me to hurry up to Palo Alto. His tone was affectionate, dear, loving, but like someone whose luggage was already strapped onto the vehicle, who was already on the beginning of his journey, even as he was sorry, truly deeply sorry, to be leaving us.
He started his farewell and I stopped him. I said, “Wait. I’m coming. I’m in a taxi to the airport. I’ll be there.”
“I’m telling you now because I’m afraid you won’t make it on time, honey.”
When I arrived, he and his Laurene were joking together like partners who’d lived and worked together every day of their lives. He looked into his children’s eyes as if he couldn’t unlock his gaze.
Until about 2 in the afternoon, his wife could rouse him, to talk to his friends from Apple.
Then, after awhile, it was clear that he would no longer wake to us.
His breathing changed. It became severe, deliberate, purposeful. I could feel him counting his steps again, pushing farther than before.
This is what I learned: he was working at this, too. Death didn’t happen to Steve, he achieved it.
He told me, when he was saying goodbye and telling me he was sorry
via www.nytimes.com
